Posted in Advocacy, autism, Mental Health

Diagnosis – Good, Bad, or Dependant on the System?

Validation:

It can be very hard to access treatments and be validated by ‘professionals‘ within this system without a diagnosis. Budget issues and a mental health system based in oppression that seeks to produce productivity rather than healing and often doesn’t recognise its intrinsic links to all other aspects of capitalist society doesn’t help this. However, more importantly, without a diagnosis it can be hard to validate ourselves – to give ourselves permission to display certain symptoms, feel what we feel, and believe that it’s real.

Getting a diagnosis can be a validating and liberating experience for many people – my autism diagnosis certainly was for me. It helped me understand myself, put my entire life into context, and connect with other people going through similar experiences. That was incredibly useful with all my diagnoses – finding people going through the same thing and learning how they were managing in a world often not built for us which helped me find ways to define and facilitate my own healing. Community truly is a powerful force. It teaches us that we are not alone, and is one of the most invigorating tools in supporting mental health; my diagnoses are helping me find mine.

But we must ask the question – why do we lack validation without a diagnosis? Why have we not been taught validation and community by the systems surrounding us? If human experience was universally understood as fluid and acceptable, would we need diagnoses at all?

Stigma and Stereotyping:

However, diagnoses have also been used as oppressive tools throughout history, and being given a diagnosis can be a terrifying experience. For example women could be put into mental institutions if their husbands thought they weren’t living up to their duties and this was justified under the label of hysteria. Nowadays Black women are significantly more likely to be diagnosed with BPD – this may be a misdiagnosis of a neurodivergency (chronically under recognised in Black people) or due to how their traits and emotions are perceived so different within the system. Black people are also four times more likely to be detained under the Mental Health Act in the Uk – a hugely oppressive tool that twins criminal incarceration.

It may feel like a condemnation to receive a diagnosis due to preconceived notions of stigmatised mental illnesses, and lack of care options. Sometimes it can seem like a lifetime of suffering and inevitable failures lie ahead. It may even be harder to be taken seriously within the system – especially in psychiatry wards where any legitimate complaints can be brushed off as ‘symptoms’. Telling family and friends may elicit negative reactions due to their preconceived ideas, regardless of how positive the experience was for the individual

Stuck in a Box:

Although it can be liberating to understand your behaviour through the lens of a diagnoses, it can also be challenging when dealing with others and interpreting your own experience. It can be difficult to know where you start and where the illness ends, or to what extent you should view yourself as your illness. It can be difficult to know whether an emotional reaction is ‘natural’ or a symptom or a potential warning for future issues. It can be difficult to be heard and seen as anything but your diagnosis and your experiences as anything separate or unrelated to it by others.

Diagnosing a mental illness is not straight forward. No one person presents the same, and often two psychiatrists will have completely different opinions leading to misdiagnosis/ confusion for the individual trying to grapple with many opinions and find understanding.

And yet once given a diagnosis we are often stuck in a box or a more rigid understanding of who we are and how me must think and will behave. Does that seem logical? It doesn’t to me. But it’s understandable within a system that looks for easy processing, and profit – both achieved through the over medicalisation of human distress. 

When the DSM was first released in 1952 there were 102 diagnoses in it. By 2000 there were 365. This has since reduced again – but you can see how inexact and dramatic the medicalisation has been.

Nonetheless, getting a diagnosis, finding community and comfort it in, can be a very positive experience. My autism diagnosis certainly was for me, and being able to say I’m bipolar helps me feel whole and proud of everything I’ve been through. But getting those diagnoses, navigating conversations, therapy, and life with them has been challenging and complicated. And I am privileged in many ways. Bottom line – receiving a diagnosis is not something to be afraid of, and if your experience was good then that is amazing, and valid! But negative experiences are just as valid too. Perhaps even more so because they often fall on the more marginalised. And everyone’s emotions, pain, and trauma are valid with or without a label. We deserve a society that teaches us that.

Sources

  • Sedated: How modern capitalism created our mental health crisis by James Davies
  • verywellmind.com 
  • mind.org.uk
  • Phenomenology of Borderline Personality Disorder, The Role of Race and Socioeconomic Status, Natacha M. De Genna, PhD and Ulrike Feske, PhD
  • My brain
Posted in Advocacy, Mental Health

Is It Really Ok Not to Be Ok?

You may have heard the phrase ‘it’s ok not to be ok’ floating around. I myself have posted it on my Instagram page. And let me make it clear – I absolute believe it is ok not to be ok. It is acceptable, and in many ways healthy and necessary, to feel the full spectrum of emotions – including the ones that would come under the category of ‘not ok’. However when I hear this statement, I bristle against it. I always have. Somehow the statement seems to place an onus on the person feeling the emotions to allow themselves to feel them. And yes, that’s kind of the point. The first step to healing is often simply learning to feel and recognise what we feel/ why. But this statement brings to the forefront of my mind a deeper problem – that many of us can’t allow ourselves to feel.

In our society, if many of us were to allow ourselves to not be ok, we would need time off work or school. It would impact our productivity in a capitalist system that thrives of productivity, that measures our value and worth on what we can contribute. And many of us simply can’t afford to take time off work, or miss out on education when there won’t be someone to help us ‘catch up’. If people can’t afford to self isolate in the middle of a global pandemic because of economic struggles, how are they ever to be expected to take a day off work for their mental wellbeing, until it is so far degraded they are forced to, or they have internalised any struggles so trauma continues to be passed down through generation and unspoken interpersonal difficulties spread in our communities rather than a strengthening love between us?

Then there’s the issue of needing support, emotionally. When current mental health systems are set up in a way that fails to individualise care, fails to help minorities, recognise the impact of societal structures on our mental health, looks to healing in the context of productivity and ‘normality’, and incarcerates those it cannot get to conform without true sympathy – with all of this, how are we meant to truly allow ourselves to not be ok if we can’t trust or rely on a system meant to help us? An incompetent system. And even when it does help us, getting access to care in the first place takes months or years.

Next comes the issue of how these systems have impacted individual psyches. Mental health issues continue to be on the rise. And I stress that I am writing about this not to bum anyone out, but because when we talk about these issues, we empower ourselves to build a brighter future. I truly do believe that. An estimated 50% of people will meet the diagnostic criteria for a mental illness in their lifetime, and pretty much all of us feel the impacts of the world around us on our mental wellbeing at some time or another in our lives. After all, we all have mental health. So we need people to rely on, support networks. But it can be a challenge finding that in professional systems. Well then maybe we find that in our communities instead. That would be ideal. Except, we haven’t been taught how to support each other. We haven’t been taught how to build strong communities, or societies built on care for each other and working together rather than survival in a capitalist environment. And with everyone dealing with their own battles in life, it can be incredibly difficult to find our way through it all and build support systems. We simply don’t know how. But I believe we can learn. I have hope that with communities of people healing together, we can truly make ‘it’s ok not to be ok’ mean that – with none of this background context that I perceive now.

All your emotions are valid, and it is ok not to be ok. But it is also necessary that we continue to destigmatize mental health through breaking down the systems that compound the issues connecting it. Sending love and support to you all today x

Posted in Happy Notes, Managing Mental Health, Mental Health, Personal Growth

An Anxious Experience

Today’s post is a guest post written by Eya, a follower of Our Happy Notes on Instagram (their username: @the_dangerous_me). It was edited by Millie Bevan, founder of Our Happy Notes. If you would like to collaborate please email ourhappynotes@gmail.com or fill out the contact form on the website.

Anxiety can be a very physical experience where you can’t understand what’s happening to your body.  It’s hard to rationalise; it feels like your hormones have gone into overdrive. And really they have – being afraid or nervous is your body and brain’s way of telling you that there is danger nearby, so you may think at first that the feeling will pass, but anxiety means your brain sees danger everywhere. It doesn’t pass so easily. 

Anxiety is a silent killer. It kills your soul, it cuts you to pieces. Consider yourself as a game to anxiety because it makes you feel like a doll which it plays with. You can’t sleep at night and you constantly question what the people around you might be thinking, getting stuck in a loop with these thoughts going round and round in your head, replaying everything you’ve said and done. I have experienced anxiety since I was 13 years old when I started to lose sleep andi cried at night and i suffered. I felt so alone and it was a dark time in my life. I lost friends, became isolated, and soon started to experience depression as well. But there is  hope. I went to a therapist and day by day I felt better. Anxiety is not a topic to be taken lightly. It can make life so difficult. But you are not alone and you can look after your mental health. Eventually, with patience, it gets better.

There’s a lot of love out there and people that care. You can learn to love yourself again; know that there’s nothing that could stop you from your dreams and achievements. Nowadays I feel so much better, so I want to pass that hope onto you so you can enjoy everyday for yourself. 

Posted in Happy Notes, positivity

50 Compliments That Are Not Appearance Based

I know personally that it can feel a bit awkward to give or receive compliments, the protocol on when to compliment someone and how to react is a bit confusing to me. But I also like to imagine a society in which complimenting people was a more normal thing to do; where being open about how we feel (including our positive feelings towards others – complimenting them) was encouraged and normalised. However much of the time when we do compliment people it is appearance based. This is difficult because it can sometimes reduce someone to their appearance, which they don’t always have control over, and looks past who they are as a person and what they mean in our lives – especially when it’s to do with their body and not the way they dress (something they may use as a form of expression) for example. So I’ve put together a list of 50 compliments and open statements that are not appearance based. My challenge to you is to compliment at least one person a day for the next week on something other than their appearance. Let me know how it goes and any other ideas for compliments in the comments below!

  1. You make me smile 
  2. You’re funny 
  3. You make me happy 
  4. You’re kind 
  5. You make me feel safe 
  6. You glow 
  7. Your sensitivity is so strong 
  8. I appreciate you 
  9. You inspire me 
  10. You’re so strong 
  11. I admire your work ethic 
  12. You mean a lot to me 
  13. I love your honesty 
  14. You have a great mindset 
  15. You’re so brave
  16. You’re so loving 
  17. You’re are worthy 
  18. I am comfortable around you 
  19. You did great today 
  20. You are a warm person 
  21. You’re so understanding 
  22. You are a good listener 
  23. You are really insightful 
  24. You always care 
  25. You’re wonderfully unique 
  26. You are perfect exactly as you are 
  27. I wish more people were like you 
  28. I respect you 
  29. I trust you 
  30. I’m so happy you’re in my life 
  31. You’ve flourished as a person 
  32. You make a difference 
  33. You’re becoming even more amazing – and I didn’t think that was possible
  34. Your personality lights up the room 
  35. You deserve good things 
  36. You’re great at giving advice 
  37. I love how passionate you are about (blank)
  38. I love your imagination 
  39. You matter to me
  40. I love being around you 
  41. I love how confident you are 
  42. You make people feel important 
  43. I respect your integrity 
  44. You are a generous person
  45. You’re have an open heart 
  46. You are on your perfect path 
  47. I’m proud of you 
  48. Your ideas/ beliefs matter 
  49. Your happiness is infectious 
  50. You are a great leader
Posted in Advocacy, autism

Ugly Autism

As always when talking about autism, I want to remind everyone that autism is not a mental illness. It is a type of neurodivergency; this basically means as autistic people our brains think and process information differently to the ‘norm’ that is expected in the world. However autistic people are more likely to suffer with mental health issues, largely in part to the fact that we are living in a world that isn’t built for us. I’ve talked about an overview on autism acceptance before – which you can read here – but today I wanted to discuss the complexity of an autistic experience and how as more people get involved in autism acceptance and advocacy (which is an amazing thing that I am thrilled to see!) we must keep in mind the spectrum of experiences and therefore the complexity of the necessary solutions.

Sometimes my autism isn’t pretty. I can still fit into the world as I am expected to, but that comes with effort which often goes unseen or under-appreciated. I can do this reasonably easily compared to some, and this is in part due to other aspects of my identity (such as my race) and the supportive people who surround me. You can view this as lucky or not; I think in a way it is unfortunate. It’s unfortunate that I have to manipulate the very essence of the way I think in order to fit into systems I often have no desire to engage with in the first place. I think it’s unfortunate that we can even frame this as ‘lucky’ because that just points to how painful life is for those who can’t, and how this pain is worse than the struggle of concealing one’s true self. While I do frame my autism as my superpower sometimes, I do not believe in the rhetoric that it is a blessing – this also lends to the rhetoric that it could be a tragedy when in reality it just is what it is. I frame it as my superpower personally because that helps me cope with its challenges, and because being autistic is so central to my identity that embracing it in a society that often doesn’t is radically self loving for me. My mental health issues are not the same as me being autistic, but since autism affects how I process everything they are of course intertwined and I have no doubt that being autistic in a world that isn’t has been part of how bad my mental illness has gotten and how confusing it has been to understand. In particular I think my early experiences of mental health issues (before they developed into a clear mood disorder of their own) were heavily intertwined with my autistic experience.

So why am I telling you all this? To give you the smallest cross-section of just one person’s autistic experience, and the complexity of even trying to begin to comprehend that experience, so that you might begin to grasp how neurodivergency and the way it is approached by society is not something that can be easily defined or explained. And that is essentially the point of this post. There are more conversations happening around neurodivergency now then ever before – and that is a joyous and wonderful thing! But these conversations cannot be dulled down to a single Instagram post, or a single profile of autism – which threatens to be the most easily palatable representation of autism. Think of how mental health awareness is sometimes boiled down to self-care, bosses offering a free yoga class to their employees, and pity for the people who can’t socialise but can still just about get through a days work. This kind of awareness fails to recognise or help those suffering in ways that are uncomfortable for us to hear about, or impede how they might function in the systems they are expected to – it doesn’t help the person who has to take a year off work, nor the person who has to call an ambulance because they are convinced they’re dying, nor the person who lashes out at others with angry words because they can’t deal with their inner turmoil. I don’t want a similar pattern to happen as we see more autistic and neurodivergent awareness and representation. We can’t afford to ignore the messy parts of autism that might make some people a bit uncomfortable, or the fact that many neurodivergent people can’t (or don’t want to) participate in traditional capitalist structures that aren’t set up to support them. As there is more awareness, we must show the full array of autistic experiences – from all races, with comorbid mental health issues, different traits, physically disabled autistic people etc etc.

Autism and neurodivergency can’t become something trendy, like a new kind of personality test for CEOs to try and enhance their team and their diversity. They just need to become tolerated, known, understood. Because neurodivergency isn’t always palatable; sometimes it’s messy and it’s different and we have to make sure we don’t run the risk of autistic and adhd people who can more easily fit into the societal expectations (and who want to, because not everyone does) getting ahead and heralded as some liberal caring symbol for employers – for example, while others continue to be ignored. 

Posted in Managing Mental Health, Mental Health

How to Support Someone With Mental Health Issues

It can be extremely hard to watch someone you love and care about going through a tough time regarding their mental health. It can also be painful if someone close to you discloses their mental illness or mental health struggles and you had no idea about it. You may feel like a failure yourself, like there’s nothing you can do, like you are useless. Essentially it may start to impact your mental health as well. That’s why the most important thing to remember when supporting someone with mental health issues is that you need to look after yourself as well. You have to.

1. Look after yourself

Sometimes we want to rush in and save the whole world – fix everything – but this simply isn’t possible. Perhaps at first it may seem like a good idea to try and take on the other person’s issues entirely as your own, without giving yourself the space needed to process your own emotions. In fact for a short while this may actually help the other person – but that’s not sustainable; long term it will lead to you burning out, struggling yourself or becoming resentful, likely making the entire situation worse. That’s why it’s so important to look after yourself, even if this is just journaling at the end of the day to help you sort out the feelings of the day, or doing a hobby once a week, the possibilities are limitless and you have to find what works for you. The important thing is that you do find it. And putting in boundaries with the person you are supporting can also help this, and most likely will help them in the long run too.

2. Listen to them

Many people with mental health issues, especially when they are first opening up about them, doubt themselves, feel ashamed or invalidated. By listening to them with an open mind you can help lessen these feelings. And by listening, I mean just that. Not everyone wants (nor even needs) advice or solutions all the time, sometimes they just need to be heard so they feel a little less alone. When having a conversation about their emotions/ experience it can be really helpful to ask the question ‘would you like me to offer advice or just listen to you?’. Validating their experience through listening to them can have a huge impact for someone struggling and give them confidence and reassurance. Remember that they are the one that lives in their brain, and they know what they are going through better than anyone else; it’s not your job to dictate to them what they are undergoing. However, linking to my last point, it is important that you don’t take on all of their feelings for yourself, so placing boundaries can be really helpful – for example requesting that before they talk to you, they ask you if you are in a place to have that conversation.

3. Involve them

Going through a tough time mentally can feel very isolating, and our brains can make us feel very lonely and rejected. That’s why it’s important to continue to involve someone who is struggling mentally. This could mean continuing to invite them to social events while making clear there is no pressure or expectations placed upon them to attend. If they accept and invitation, it might then mean making some accommodations for them, like helping them order food if that’s a point of anxiety for them or giving them some space if they need it for example. It might also mean offering to meet them one on one for a while if that’s easier for them, or talking with them about plans to keep them safe and checking in with them regularly. To relate to my last point, if you’re unsure of what to do, you can always ask them if they have any ideas or if there’s a way you can accommodate them better. This is a huge sign that you care for and accept them still.

4. Research their experience

If the person you are supporting has a diagnosis or has disclosed to you specific symptoms, it can be helpful for your own knowledge to research this. A quick google search will bring up symptoms lists and examples of how these might affect them, but I would also encourage you to look beyond this and read up on the personal experience of different people from different walks of life to get a clearer picture. This can help you understand the person you are supporting better without the worry that you are prying to much, and it can help them to feel seen as this informs how you support them.

5. Make them a happy kit

I’ve made a previous post on this, which you can read here. A happy kit is essentially a little collection of things that can help someone process their emotions, get through a crisis moment, or just generally cheer them up. It can include some things that they find calming or cheering, and maybe a list of distractions and mini coping exercises to try. Distractions are also a really great way to help someone with a mental health issue – it’s not a long term fix but it can help them escape their brain for a minute and feel more ready to face the day. If a distraction is creative it could also be a way of helping them to express themselves, and feel less alone if you’re doing it together.

6. Help with small tasks

Small tasks such as cleaning, ordering food, or remembering deadlines can become seemingly impossible for someone experiencing a mental health struggle. If you feel up to it you can offer to help them with these small tasks, even if that’s just by doing it with them (for example cleaning together one afternoon, or going food shopping together). As always, asking them how best to help is always a good idea, and if they’re not sure offering something specific – such as sending them a reminder text – might appeal to them.

7. Show them you care

It’s simple, but one of the most helpful and meaningful things anyone has ever done for me during my own struggles has been showing me they cared. This could mean writing someone a supportive letter, or making them a playlist. Just something simple that lets them know you care.

7. Be patient

We all have mental health and it can be a long term challenge to face for many. Someone in the midsts of a struggle isn’t going to overcome it overnight, but with amazing people like you willing to support them, they can find their way through. Keep in mind that you need to be patient – one of the reasons why looking after yourself is so important – and that their struggles are not a comment on you, ever. Eventually the sun will come shining through!

Posted in autism, Managing Mental Health, Mental Health, Personal Growth

How to Make a Happy Kit

I still struggle greatly everyday with my mental health, and that can be enormously frustrating. It can also make it feel like the smaller things I can do to help myself are useless in the long run. However, I know this isn’t true. I know that when I add up all these little bits and pieces (like writing and walking for example) they do make an impact. And, yes, sometimes it’s a very small impact – but I know how much more hopeless and desperate it would make me feel if it wasn’t there. One of my favourite things I ever did to help myself manage my mental health was to make a ‘Happy Kit’ (as I call it). The great thing is that it’s totally unique to me and my needs, so I thought I’d share a little guide on how to make your own Happy Kit to suit you. I really love mine and I would recommend that everyone make something like this, because we all have mental health and challenging days – or simply just bored days. In my case it has loads of stuff in it to help me manage my anxiety, depressive episodes, sensory overload, and boredom; I keep it in my school bag at all times. So here’s how I made it:

My ‘Happy Kit’ is almost like a summary of all the tools I’ve gathered over the years to help myself. However, before you decide on the specifics of what will be in your kit, decide how you want to use it. Do you want it to be a box full of stuff that will keep you entertained when you’re bored at home? Or something you can always keep in your bag? Or maybe it’s something you use to help you wind down in the evenings? Once you’ve decided this, you can then choose what container you’re going to keep it in. I keep mine in a black makeup bag with sparkles sewn into it – I like the texture and the way it catches the light. You might choose to keep yours in a box or on a shelf in your bathroom cupboard for example.

Before I go further, here’s an overview of the contents in my own Happy Kit to give you an idea of what to keep in mind when making yours:

Me and My Happy Kit
  1. Fiddle toys – they help me focus in lessons, ease anxiety, and remain grounded during sensory overload. I have several different kinds with different textures
  2. A list of distractions – I have so many different activities on this list! And they range from things that are easier for me to do when I’m feeling low, more creative for when I’m hyper, and calming for when I’m anxious. I have this list because I’m learning that if I can direct myself towards an activity, it eases how I feel, but sometimes I can’t think of anything to do, so I refer to the list. And if I still can’t decide, I can always just pick a random number and do that activity!
  3. Gemstones – I’m not entirely sure if I believe gemstones work, but I do believe they can act as a placebo at least, and I find it very calming to hold them, if only as a way to remind me to try and bring myself back into a more neutral place mentally
  4. Items with sentimental value – To remind me of good times and the love of people in my life
  5. A toolkit list – This is a list with easy to follow steps that summarise particular tools I’ve learnt to help me manage and think more clearly, like how to accept emotions and reduce judgements
  6. Sweets/ mints – Sometimes I have Rescue Remedy sweets in my kit and sometimes I just have normal sweets, but something that tastes nice and I can suck on is just pleasant and calming for me
  7. Something smelly – not smelly in a bad way! Just something that smells pleasing to me, like lavender or essential oils or a mini perfume. Sometimes because they’re calming scents, and sometimes just because they make me feel fancy. As someone who’s autistic smells can also help when I am sensory seeking (kind of the opposite to sensory overload/ avoiding such) in a really simple way
Some of the things in my happy kit

Obviously all of that is specific to what helps me, but it might give you some ideas. If you like fiddle toys or nice textures then put something like that into your kit. For me they represent something calming and soothing to me that I can also use to engage my brain. I’d definitely recommend you to make a list of distractions/ activities regardless of what you’re using your Happy Kit for – you can tailor it to yourself but it comes in really useful in lots of situations. For example if you are making your kit to help you relax in the evening it could have a a list of ten things that you can do to help you relax and you could pick one each evening. If it’s to calm anxiety, then put down a few distractions and a few activities that might calm your anxiety – like breathing exercises, colouring, or reading a book perhaps. And if you’re making your kit for when you are bored then throw down a load of different activities, and make sure to include some you might not usually do (for example, writing a song even if you’re not musical). My list includes a mixture of all these different things! Here’s some of the things on my list:

A picture of some of the activities on my distractions list

I hope this has inspired you to think about making a little toolkit for yourself (or even for someone else). Please feel free to ask for any advice or share your ideas for your own happy kit. Sending all my love and support. Xx

Posted in Happy Notes, Notes

Random Acts of Kindness

Kindness is something intangible, and yet it is very real and very powerful. In the Cambridge dictionary kindness is defined as ‘the quality of being generous, helpful, and caring about other people, or an act showing this quality’. If we think back on our lives I’m sure we can think on many moments where people have shown us kindness. Sometimes a seemingly small or insignificant act of kindness can have the greatest impact – for example someone helping someone else carry a bag on a particularly bad day could remind them that there is good in the world and prevent them from spiralling into a worse place mentally. And sometimes it’s the grand gestures of kindness over a long period of time that make an impact on us – for me the fact that my friends never gave up on me during the dark times is one the greatest acts of kindness that I have ever experienced. The point is, what we qualify as a kind act may be vary for each of us, but the underlying caring and generosity always helps to brighten up the world and our lives.

Back in November I posted on my Instagram about a 30 day random acts of kindness challenge. The idea behind it was to inspire myself and others to think about doing something small but kind once a day in order to be more mindful about how we can make a positive impact on the people and world around us. Why? I believe that when we put good energy out there, it spreads – a bit of a butterfly effect if you will – and it goes beyond the original act of kindness. Also, as someone who struggles with their mental health I know that being kind can have a profound effect on how I feel; it makes me feel better about myself and also helps to get me out of the cycle of my thoughts. But don’t forget you can also show yourself kindness, in many forms, and that is just as important. It helps us to be able to function better and feel better and do even more for others.

So here’s a list of 31 random acts of kindness. I would encourage you to try one out, or make it a challenge to do one a day for the next 31 days! Please comment below with any more ideas or stories of how someone else has helped you out:

  1. Tell someone you appreciate them
  2. Sign a petition for a cause you care about
  3. Say hello to someone and ask how they are
  4. Donate old clothes to a charity store
  5. Hold the door for someone
  6. Bake or cook something and give it to someone – a neighbour, family member, coworker
  7. Give three honest compliments
  8. Write a happy note and leave it for someone to find/ post it online (use #ourhappynotes)
  9. Comment something positive on a post
  10. Make/ hang some bird feeders
  11. Leave a thank you note for your mail carrier or another civil worker who does a lot for you
  12. Buy some food for a food bank
  13. Smile at someone
  14. When you’re going on an errand, ask a neighbour/ friend if they need you to do anything for them
  15. Share a post about an issue you care about
  16. Write some positive messages on the pavement with chalk
  17. Leave a bit of change in a vending machine
  18. Bring some food to a homeless person
  19. Wear your mask with vigilance if you can – this one should be some every day!
  20. Support a small local business, either with money or by leaving a positive review/ following them online
  21. Spend the day trying to be kind to yourself – listening to what you need, letting your emotions be, relaxing etc
  22. Do a chore that someone else would usually do
  23. Plant something
  24. Have a complaint free day
  25. Send a letter to an elderly person
  26. Read an article to educate yourself on an issue
  27. Encourage someone
  28. Check in on your friends
  29. Write to your MP/ representative about something you feel needs attention
  30. Let someone go ahead of you in line
  31. Brainstorm more ideas for kindness and how you can incorporate it into your everyday life

Let’s spread some sparkly, shiny, generous energy in the world! Sending all my love and support,

Millie xx

Posted in Advocacy, autism

A Guide to Autism Awareness Month (By an Autistic Girl)

April is autism awareness month, so you might well come across information floating around about autism online. For many autistic people, especially autistic advocates, can find this month difficult or have mixed feelings around it – not all the information circulating will be correct or portray a positive narrative, and this can be frustrating, stigmatising, and exhausting to correct. So here is a short guide on how to navigate autism awareness month for autistics and neurotypicals (people who do not have autism and are not neurodivergent) alike:

The Ground Rules

Firstly, let’s lay some ground rules for autism awareness month – the stuff you really should know. When you read something about autism online, do not automatically assume it’s true. If it’s written by an autistic person, then it’s generally trustworthy. If it shows autism as a problem to be fixed, or a desperate life, then it’s not to be listened to. And if it comes from ‘Autism Speaks’ then completely ignore it (more on that later). Next, make sure you are not correcting autistic people on their own experience, or trying to speak over them. Instead, uplift autistic voices – and all autistic voices. We are as diverse as the world, and we all have value, so make sure you’re paying attention to LBGTQ autistics, Black autistics, non-verbal autistics, autistics with higher support needs… all of us! Finally, don’t use the #actuallyautistic hashtag if you’re not autistic, it’s a hashtag we use to find each other and to identify posts by autistic people.

Acceptance not Awareness

While becoming more aware of the diversity and lived experience of autistic people is amazing, and helps to de-stigmatise autism, it’s not enough. Furthermore, sometimes the idea of awareness can become a connotation of a problem that needs to be solved or cured, which autism is not. So during this month, you may see it called ‘autism acceptance month’ instead. That’s because what autistic people really need is acceptance. More than that we need to be accommodated and valued in society, because every single one of has worth no matter where our traits lie on the spectrum, and when accommodated to we can do so much. So please, make sure that this month you are also thinking about and working on your acceptance and accommodation of autistic people. If you want to read more about why I think autism is amazing, please read my post ‘Autism is My Superpower’ here.

All Year Round

The fact is that autistic people are always autistic – all year round. That means that you cannot only work on accepting autistic people during the month of April. Including us, accommodating us, appreciating us and loving us is a full time job. And it’s important, maybe even paramount, to note that accepting autistic people isn’t just about accepting those who have a diagnosis or are public about that diagnosis. Many of us can’t be open with our diagnosis, or are uncomfortable about being open with it (which is why we need your help to de-stigmatise autism). Many people don’t even know they are autistic. So what does that mean for you? It means accepting the weird kid who only talks about the same few topics or can’t make eye contact, and saying hello to them, regardless of what response you might get. It means not laughing at the way in which someone flaps their hand or the odd noises they make. It’s about being sensitive to the person who finds light and sound overstimulating. It means accommodating the quiet girl, even when she can’t talk at all. It means caring.

No Autism Speaks

You may have heard/ hear about Autism Speaks’ light it up blue campaign, supposedly in support of autistic people. However autism speaks have been hugely damaging to the autism community, portraying autism as a thing that destroys lives and families, and something that needs to be solved. They also do not help autistic people in a financial sense – only a tiny portion of their budget (I believe 4%) actually goes towards autistic people and their families, while their CEO receives an obnoxious amount. Furthermore, not one person on their board actually has autism, which is an outrageous sign that they do not listen to us. So instead of lighting it up blue, please light it up red, a way we are combating Autism Speaks, and use the rainbow infinity symbol instead of the blue puzzle piece of this organisation.

A Guide for The Autistics

This month might get overwhelming for you, especially if you are trying to correct information online or advocate a lot. So this is my reminder for us to check in with ourselves and allow ourselves time to rest and do what we enjoy as well. If you are feeling worn out maybe reach out to someone who knows you well also and ask them for a bit of extra support. You are under no obligation to do anything this month if you don’t want to. And maybe while everyone else is working on their acceptance of us, we can also try to accept ourselves. It’s something we can struggle with as autistic people. But we are so valid, and honestly really awesome.

Thank you so much for reading. If you have any questions please do drop them in the comments, and feel free to get in contact. Sending all my love and support!

Posted in Advocacy, Mental Health

Overview on Eating Disorder Awareness

As someone who spent a long time struggling with disordered eating – and still continues to grapple with it – I know first hand that eating disorders, diet culture, body image and our relationship with food is so much more complicated than a few statistics. However I also know that de-stigmatisation of mental health starts with awareness, and that de-stigmatising mental illness saves lives and has the power to change communities. So for eating disorder awareness week here’s a short overview I put together on eating disorder awareness. Follow this blog for more in depth posts to come on this topic:

Eating Disorder Misconceptions:

Not everyone with an eating disorder;

… is skinny

… is underweight

… goes to hospital

… knows they have one

… gets diagnosed

… recovers

… is white

… is female

… has anorexia or bulimia

… is a teenager

… looks like they have one

… restricts or purges

… survives

… has body dysmorphia

Eating Disorder Facts:

⁃ Around 25% of those affected by an eating disorder are male

⁃ Only around 10% of people suffering with an eating disorder are anorexic

⁃ Eating disorders are not a choice or for attention – they are a mental illness

⁃ Research suggests that people that have a family member with an eating disorder are more likely to develop one

⁃ Black teenagers are 50% more likely to exhibit symptoms of bulimia than white teenagers

⁃ LGBTQ people are more likely to develop an eating disorder

⁃ Research suggests that up to 20% of autistic people exhibit traits of eating disorders, and while anorexia is the second least common eating disorder among non-autistic people it is the most common among autistic people

⁃ Approximately 1.25 million people in the U.K. have an eating disorder

⁃ Anorexia has the highest mentality rate of any psychiatric disorder

Types of Eating Disorders:

⁃ Anorexia Nervosa

Anorexia (or anorexia nervosa) is a serious mental illness where people lose a lot of weight due to restricting how much they eat and drink. They may develop “rules” around what they feel they can and cannot eat, as well as things like when and where they’ll eat, and around exercise. Anorexia can affect anyone not matter their age, gender, ethnicity or background.

⁃ ARFID

Avoidant restrictive food intake disorder, more commonly known as ARFID, is a condition characterised by someone avoiding certain foods or types of food. They may restrict overall intake of intake of certain foods, and have foods that they deal as “safe”.

⁃ Binge Eating Disorder

Binge eating disorder (BED) is a serious mental illness where people eat very large quantities of food while feeling like they are not in control or what they are doing. Evidence suggests it is more common than other eating disorders, and is often misunderstood.

⁃ Bulimia

People with bulimia feel caught in a cycle of eating large quantities of food (called bingeing), and then trying to compensate for that overeating by purging in some way. That may be vomiting, taking laxatives or diuretics, fasting, or exercising excessively.

⁃ OSFED

Anorexia, bulimia, and binge eating disorder are diagnosed using a list of expected behavioural, psychological, and physical symptoms, however sometimes a person’s symptoms don’t exactly fit the expected criteria for any of these three specific eating disorders. In that case, they might be diagnosed with an “other specified feeding or eating disorder” (OSFED).

Things not to say to someone with an eating disorder (or literally anyone for that matter)

⁃ Are you really going to eat all that?

⁃ That’s a meal not a snack!

⁃ You’re just attention seeking

⁃ You’re weak

⁃ Just eat more/less

⁃ Get over it

⁃ But you’re eating well, how can you have an eating disorder?

⁃ I could never starve myself, I wish I was as devoted as you

⁃ Why don’t you just stop throwing up?

⁃ What diet are you on?

⁃ You should just go on a diet

⁃ Pointing out their weight gain, weight loss, anything about their body or anyone else’s body; try to compliment people through things unrelated to appearance

Eating Disorder help

⁃ Recovery is completely possible; the worst day in recovery is better than a single day being ill

⁃ No one with an eating disorder has anything to be ashamed of; there are so many loving and supporting people out there ready to help

⁃ Asking for help is not weak; it is brave

⁃ If you are a family member or friend supporting someone with an eating disorder you deserve to be supported as well

⁃ You deserve to have a healthy, sustainable and accepting relationship with your body and food

-You are not alone

Goeree, Sovinsky, & Iorio, 2011; Beateatingdisorders.co.uk; Autism.org.uk; Health.com