Blog posts relating to my advocacy for better mental health systems, support, and reducing stigma
Is It Really Ok Not to Be Ok?
You may have heard the phrase ‘it’s ok not to be ok’ floating around. I myself have posted it on my Instagram page. And let me make it clear – I absolute believe it is ok not to be ok. It is acceptable, and in many ways healthy and necessary, to feel the full spectrum of emotions – including the ones that would come under the category of ‘not ok’. However when I hear this statement, I bristle against it. I always have. Somehow the statement seems to place an onus on the person feeling the emotions to allow themselves to feel them. And yes, that’s kind of the point. The first step to healing is often simply learning to feel and recognise what we feel/ why. But this statement brings to the forefront of my mind a deeper problem – that many of us can’t allow ourselves to feel.
Sometimes my autism isn’t pretty. I can still fit into the world as I am expected to, but that comes with effort which often goes unseen or under-appreciated. I can do this reasonably easily compared to some, and this is in part due to other aspects of my identity (such as my race) and the supportive people who surround me. You can view this as lucky or not; I think in a way it is unfortunate. It’s unfortunate that I have to manipulate the very essence of the way I think in order to fit into systems I often have no desire to engage with in the first place. I think it’s unfortunate that we can even frame this as ‘lucky’ because that just points to how painful life is for those who can’t, and how this pain is worse than the struggle of concealing one’s true self.
A Guide to Autism Awareness Month (By an Autistic Girl)
Firstly, let’s lay some ground rules for autism awareness month – the stuff you really should know. When you read something about autism online, do not automatically assume it’s true. If it’s written by an autistic person, then it’s generally trustworthy. If it shows autism as a problem to be fixed, or a desperate life, then it’s not to be listened to. And if it comes from ‘Autism Speaks’ then completely ignore it (more on that later). Next, make sure you are not correcting autistic people on their own experience, or trying to speak over them. Instead, uplift autistic voices – and all autistic voices. We are as diverse as the world, and we all have value, so make sure you’re paying attention to LBGTQ autistics, Black autistics, non-verbal autistics, autistics with higher support needs… all of us!
Overview on Eating Disorder Awareness
As someone who spent a long time struggling with disordered eating – and still continues to grapple with it – I know first hand that eating disorders, diet culture, body image and our relationship with food is so much more complicated than a few statistics. However I also know that de-stigmatisation of mental health starts with awareness, and that de-stigmatising mental illness saves lives and has the power to change communities. So for eating disorder awareness week here’s a short overview I put together on eating disorder awareness. Follow this blog for more in depth posts to come on this topic:
Reducing Mental Health Stigma
I have been fortunate that I have not personally come up against too much explicit stigma throughout my mental health journey so far – and when I have, there has been an incredible amount of supportive people surrounding me. However just a quick trip online reveals how much stigma still exists around mental health, and backhanded comments such as ‘just snap out of it’ or ‘you don’t look mentally ill’ are far too common. Sometimes I am afraid that I will be left out from job opportunities or educational experiences in the future because of my struggles. And so it is important to me, for my benefit and the benefit others, that I do what I can to reduce stigma in my advocacy. For me that means sharing my story, educating myself (especially on the intersectionality of mental health in society), and being open in conversation. Here is my quick guide on what anyone can do to reduce mental health stigma.
Letters to My MP
This is the first of five letters to my MP regarding the mental health system, sent originally in May – it is not even worth me posting the others because they are all very repetitive following evasive responses. However I thought I would post this one as it gives a comprehensive overview of how I regard the mental health system in the U.K. and I’d like to say is a reasonably interesting read. If you’d like to read any of the others or responses please do get in touch.
Funding Mental Health – An Introductory Question
‘When we talk about funding the system we need to consider what we are funding. Do we want to pump money into a fundamentally broken system (because it’s been getting worse for quite a while) or do we want to use that money to reform the way the system works, promote independent person led treatment, and then provide resources to help make that happen?’
I Want Change
‘There should be staff for CAMHS and inpatient. When the teachers are so worried, you’re wondering what it might be like to fly, they’re talking about phone calls to parents and police – you shouldn’t be more afraid of hospitals than you are of dying. It shouldn’t have gotten to that point where you weren’t light enough, bad enough, clear enough, strong enough – teenagers shouldn’t have to be strong and blamed for their reluctance when all they’ve known is that they’re not enough. There shouldn’t be so many inequalities – any inequalities – in the system; so much lack of understanding of the challenges that Black people, LGBTQ+ people, disabled people face.’