Posted in Advocacy, Mental Health, neurodiversity

Ideas On Mental Health Advocacy

I get wrapped up in big ideas. And big ideas are important – the overall picture is important and helps us to understand the everyday and the connections between different issues and events. But I’m interested in the idea of how we can be effective in making change too. So I consider the question – does focusing too much on the big picture get in the way of making any change at all? How accessible is it to only talk about the big picture? Are the wider ideas helpful in getting people who aren’t already interested in mental health advocacy involved at first? Essentially – how can we actually start to make change and reach more people?

The small steps are important. So too is every single voice raised, however it may be. I am reasonably good at writing and giving talks/ workshops. I also love theatre and am passionate about the arts, something I hope to marry more with my advocacy going forwards. I am not particularly good in a protest situation. I can get very overstimulated. I’m not good at phone calls. I’m not good at prolonged in person social interactions. There are many things I’m not very good at, and though I can still lend my skills to different situations, it may not be at the frontline or in the way you might expect. My power lies in recognising that – and so does yours. You do not have to come up with an innovative idea or put your life on the line to make a difference in this world. If you can do that, wonderful! But never underestimate the unique skills and voice that you bring to the table. 

So back to the matter at hand – small actions. Very important to have the wider context. But small actions built up are what really make a difference, right? Maybe! Ok, so where do we start? Ah – well there’s a problem now, because I don’t know. No one knows. 

Is the long waiting lists the place to start? Or perhaps the funding? But then can you ever really fund a broken system? I would say no. No, we cannot just fund a broken system. But I’ve also been in rooms in CAHMS and the adult mental health service where it smells weird, the paint is peeling, and the lights don’t work. So maybe we do need to bring the basic infrastructure up to a reasonable level of functioning as is before we can start reforming and introducing new ideas/ scaling back ideas that aren’t working? 

I personally would love to see an end to the carceral, cruel way the system is. But I also know most people are unaware of the true nature of the issues with the system, unable to imagine a world without it, and that the world runs on profit. So I wonder if by focusing on the immediate abolition of the psychiatric complex this part of mental health advocacy shuts people out? I don’t know! I’m not saying that I know the answer, but I think it’s important to keep asking the questions. Maybe we need to see it in steps. Steps that may eventually lead to a very different system (or even the abolition of psychiatry), but that in the meantime are still seeing improvements. And I know that improvement isn’t enough, but it is something. It’s a step on the way to freedom. 

But then here we are again at the question of where to start. Mental health is interconnected with all other social issues. So we could even argue that the first step would be ignoring mental health altogether and solely focusing on, say, housing security. But can we really do that without including mental health provisions? Probably not. So we need all these different voices and people working together on different issues! Ok, so awareness is the first step? But awareness that doesn’t just perpetuate the same easy to swallow narrative of mental health; awareness that acknowledges the need for system change and societal change too. Although, even that awareness sounds complicated so we’re gonna have to start with easier awareness to get people on board, right?

Ok so, maybe awareness alongside something else. Fighting for funding? For changing the laws on sectioning? Both? Maybe… fighting to have a nationwide, government wide, deep conversation about what steps need to be taken. Fighting to be heard by the people with the direct power to start making those changes, so we can make a plan with them. Maybe? Or is that even too tall an order?

See, I prescribe to honest activism here at Our Happy Notes. I have chosen to share my journey with you in changemaking, and for me that means also sharing my thought processes about changemaking sometimes. This is something I am currently taking time to research, to read on, and to hear other people’s ideas on – to try and ascertain where actually might be a feasible starting place, and if that’s even a good idea. I’m not at a point in researching and discussing where I am able to come up with an idea that I can articulate and share or point people towards. But I wanted to share a bit of this process anyways, because I think at the moment I do believe all change starts with a simple conversation; connection. 

So what do you think? Do you think there is one specific demand or issue that needs to be in mental health advocacy to set the ball rolling? Do you have something in particular that you think needs to be looked at? Please let me know! 

And also… how can you use your voice? That’s a question for you to consider. It’s ok if the answer right now is that you can’t. 

Sending all my love and support to you all today xxxx

Posted in Mental Health, Personal Growth

Letter on Living

Content warning: Suicidal ideation and attempts (no graphic detail)

I always turned my phone off in that class. Always turned it off and put it out of sight. But I had some weird itching in my gut that day, a feeling I put down to anxiety but honoured nonetheless; a feeling that told me I needed to keep my phone on. So I did. And you texted. 

“Thank you x”

And I knew. Don’t ask me how, I don’t know. It had been a pretty normal day, you seemed fine at lunch as we hid away together giggling. 

He knew too, the second I showed him the message. We called you and you slurred back at us. 

An hour and a half it took to find you. Couldn’t tell us where you were, couldn’t convince yourself to stay. It’s ok, I understood. Still do. I can still remember every word I said to you on the phone that day – it’s a weird sort of irony that you can’t. I won’t ever forget what you looked like when we found you, though I only caught a glimpse before I was pulled away. 

Chocolate and tea and hugs, a cigarette on the curb and being taken for ice cream. Strange how tragedy brings people together. Wonderful though. 

We went to the theatre that night and I was bouncing off the walls, energy buzzing in my veins. The server at KFC let me take home all the mini corn on the cob at closing, my favourite. On the hardest day there was the gentlest kindness. 

On the train back home I got the call to turn around, go back into the city, my grandmother had fallen. She had a brain bleed and wouldn’t survive the night. Apparently. I never believed that. Maybe I just couldn’t fathom the possibility, but I was sure she would survive. Listened to the Matilda soundtrack on the way to the hospital – ‘when I grow up/ I will be brave enough to fight the creatures/ that you have to fight beneath the bed/ each night to be a grown up’.

She lived. I knew she would. Everyone was sitting in sadness in the waiting room, but I knew she would live. He sat across from me and was the only one to try and lighten the mood with me, asking about school and the like. It was the first time I thought he was genuinely kind to  me. He’s dead now too. 

She told me ‘I find that when death is following you around it’s usually telling you to live’. I think so too; I’ve carried that with me ever since. Because, you see, all the things I had to say to you on the phone that day, all the things I had to say to try and get you to stay just a little longer were things I needed to hear. It was so awful. I wanted to leave; I thought I wanted to leave. But I had to tell you to stay and so I realised I wanted to stay too. In a strange way you saved me that night. I was 15.

I have three suicide notes, but they’re not really suicide notes – they all open by saying that they are what I would write in a suicide note, which I’m writing to try and convince myself to stay. The thoughts still come, but I’ve got better at them. They just exist there. I don’t think I can stop them from existing there. But they don’t hurt me just by existing. I’ve realised that over time. The last time – two years ago now – that I was close, I decided I’d just go and have a cigarette first. And I went outside and I had a cigarette and something happened and it wasn’t ok yet, it wouldn’t be ok for a while, but it was survivable. Something about the futility of that moment – of being struck with the realisation that it changed in the time it took to roll a cigarette – stuck with me. So now the thoughts come, sometimes, but they go again. I don’t know the future. Maybe they’ll come back stronger. But I’m growing too. 

I’ve got really good at the ‘stay alive’ talk now. Or not really good, but it feels less foreign to me. Have had to give it a few times. Never quite so urgent as that first time, but urgent enough. Life-on-the-line enough. I’m ok with that though, because you’re all still here for now. 

You – I really thought I would lose you. If not intentionally I really thought you would turn up dead at the side of a road. God knows I woke up to the message you had overdosed enough times. But I hoped. And you kept calling. And now I have my best friend back. 

I still keep my phone on at night in case you call. Any of you. I’d like to not carry that with me one day. It hasn’t been easy to process. I don’t think I have really processed it. I barely drew a sober breath for two years after that day, so maybe that was my way of processing it. My recovery encompasses it. But I still keep my phone on at night. And you know what’s strange? I can sleep through twenty alarms in the morning – I frequently do – but I have never missed a call from you. I’ve always woken up. That’s love. That’s my higher power and my guiding force. I’ve never had my call go unanswered either. 

I woke up crying at two in the morning last year. Very disconcerting to wake up crying already. All I had was a vivid image of you in a dream drifting in the darkness. My soul was tearing and I didn’t know why. I cried, I calmed, I went back to sleep. I found out later you had gone into hospital that day. I knew what you had tried to do, in my gut I knew, you can call me crazy if you want but I did. Took you months to actually tell me and hearing the words tumbling out of your mouth hurt so much more. It was too real. And you were too ashamed. Please, don’t be ashamed. I’ve been there too. 

I live in fear of losing you. Any and all of you. But that’s the price I pay for loving such wonderful people. I am not afraid of death anymore. I’m afraid of not living. But I get to choose what that means; we get to choose. 

If I had died the first time I wanted to, I would have been dead for six years now. Wouldn’t have had my first kiss, or performed on a real stage. Wouldn’t have shared gut wrenching laughter or love. Wouldn’t have known so many wonderful people. 

I refuse to be consumed by the fear. But I refuse to accept this as normal either. That’s why I do what I do. That’s why I speak, and that’s why I love. You have nothing to be ashamed of; you deserve better. But you can learn to live too. I promise.

Posted in Advocacy, Mental Health

Mad Liberation: The Missing Piece of The Puzzle

There are a lot of social movements now that are gaining awareness and support in new ways thanks to the global communication the internet has made possible. For example, feminism, Black Lives Matter, climate activism etc. And it’s very encouraging to see that more people are becoming aware of how these all link together too. There’s still a very very long way to go, that’s for sure, and in some ways the enormity can seem overwhelming. But there’s certainly movement happening in these movements, and a lot of passion. But what about mental health? 

When we think of the mental health movement we think of mental health awareness. And for the vast majority of people what they come in contact with under ‘mental health awareness’ is hotline numbers, slogans telling people to reach out, self care tips, and really very repetitive, surface level approaches. The general public does not seem to be aware of the deep issues and abuses in psychiatry, how we view mental health, and how it really impacts all of our lives. In all the fighting for a better future, mad liberation is overlooked, underestimated, misunderstood, or ignored. And that’s damaging for all of us. We cannot be fighting for racial justice, trans rights, and human rights without mad liberation. And yet so few people seem to be aware of it – in fact many people seem scared to approach the topic, which just shows how deeply the stigma and ignorance runs. Maybe, just maybe, mad liberation is the missing piece in the social justice fight. 

Take for example the language we use to describe other social movements – you are a climate activist, a civil rights activist, a human rights activist, but you are a mental health advocate. That’s not to say advocate is a bad word, it is absolutely not, and it’s a badge I’m proud to wear. But to call myself a mental health ‘activist’ sounds wrong. Why? Is it because advocacy feels more acceptable? Perhaps it connotes simply raising awareness within the status quo, continuing to adhere to systems already in place rather than radically opposing them and fighting for change. Maybe not, but I certainly think there’s something in the language.

 Furthermore, why is it always mental health advocate, and rarely mental illness advocate, or madness advocate? For me that sums up the major narrative surrounding the mental health movement, because it focuses on the palatable part that challenges less assumptions and less people, that appeals to everyone. Everyone has mental health, so everyone should care about mental health! Yeah – that’s not wrong. But a lot of people are deemed mentally ill. A lot of people deal with the consequences of madness in this society their entire lives. And the narrative focusing on the easily digestible, easily implemented parts of mental health awareness leaves them behind yet again. It silences and harms them. 

Psychiatry uses mental illness to uphold societal values. Always has. That’s why drapetomania was a proposed mental illness to explain why slaves wanted to escape slavery. That’s why being gay was classified as a mental illness until 1990, and being trans was classified a mental illness until 2019. And that is why one of the major diagnostic criteria for mental illness nowadays is disruption to a person’s ability to work – productivity and fitting into expectations of normality are societal values. 

But people are very rarely encouraged to consider this. They are encouraged to be aware of the signs of common mental illness in the context of deriving from the expectations placed upon us, and recovery in the context of making people be productive citizens again. The common mental health awareness narrative traps us. It does not allow us to redefine healing, to discover the socioeconomic factors in wellbeing, to find community, or to change the pace at which we live. It does not allow us to think about the deeper questions of why, and how can this really be better. 

But what would happen if we questioned? We would hear the voices of psychiatric survivors shouting about the abuse they have endured in the mental health system. We would discover how mental illness and criminalisation are deeply intertwined, and perhaps discover how to create true justice by supporting and liberating people in new ways. We would start to ask, what would happen if we didn’t sedate people into the same reality, but rather found ways to help people incorporate their own reality into their world? We would find new ways of sharing resources, kindness, connection, and changing the pace at which we live. We would find new language to define our human experience. We would free all of us to actually consider what happiness entails. Finally, we would find the link to all the other socioeconomic problems we are facing today, and in doing so find new solutions and progress towards all of them. 

We need to be kind and we need to be supportive, but we don’t need to be afraid to really ask questions about mental health, its presentation, and the treatment of madness as it is. Mental health activism is needed. Mad liberation is needed. But a deep held belief that mad people need protecting – or being protected from – has too often tried to stifle the missing piece in social justice movements. Mad people deserve to be heard, believed, and treated with respect and dignity in social action spaces just like anyone else. 

So I ask the question – is mad liberation the missing piece? 

Maybe. I don’t know for sure. But I think it might be. I certainly think solidarity between oppressed, hurting, and caring people is necessary for progress. We won’t fix everything; we will get things wrong. But as long as we keep questioning, and keep learning, we can make a difference. It’s worth a try at the very least.

Posted in Advocacy, Mental Health

Mental Health is Intersectional

Today is a blog reminding everyone of a certain point I try to illuminate all the time through my advocacy: mental health is intersectional. What does this mean? It means mental health is not a stand alone issue; it is connected to all other social justice issues, and all other parts of our lives. Intersectionality is about where these issues cross over, and how they cross over, and how if someone falls in the intersection of more than one (for example are faced with racism and ableism) it can create more problems for them that may be overlooked, ignored, or misunderstood by even the most well intentioned people – myself included. But intersectionality for me also is not just about these disadvantages and discriminations – which are of course very real and very harmful and deserve to be seen. It is also about problem solving, and hope. 

The systemic issue of mental illness and its manifestation in individual people’s lives is not a stand alone issue. So it can be overwhelming to consider in a wider context because how the hell are we supposed to solve everything? I get it. It can be overwhelming, scary, and sometimes makes me want to just give up. But what if we chose to see intersectionality as empowering and a source of hope? Because it means we’re not just isolated as mental health advocates, or people who care about climate justice, or people who are trying to solve poverty. It means we are united as people who care. Understanding intersectionality, and continuing to be aware of how our understanding and circumstances may shift, allows us to be more creative in our solutions and more effective in our actions. 

If we start to realise mental health care also means community care then we are not left helplessly shouting into an abyss; perhaps instead we are empowered to create a community event, or connect with friends in a more intentional way. If we realise mental health care also means food security, then we are empowered to donate to our local food banks and come up with innovative ways to share with our community. If we realise mental health care means antiracism then we are empowered to learn and be intentional in sharing this learning with the next generation. When we realise mental health care is intersectional, we actually create stronger bonds, stronger supports, and stronger futures. 

We cannot shut our eyes to the world around us. But we might have a little bit of power over how we choose to view it. This country is becoming more and more authoritarian, and I don’t think it is an exaggeration to say it is sliding towards fascism in many ways. 

From the 3rd May more laws restricting and criminalising protest – including union action! – will come into effect. Over the weekend over 50 people were arrested for protesting peacefully during the coronation ‘celebrations’ – which cost millions while more people than ever are below the poverty line. A country without protest is not a democracy. A country where the gap between rich and poor continues to widen with government support is not looking after its citizens. We cannot ignore this and we cannot allow this, and we have to recognise how it relates to all our social justice issues. How can we ever hope to see a country with good mental health if people do not have free speech and cannot afford to eat? 

The good news is, resistance isn’t one size fits all. And understanding intersectionality can allow us to fight back in an effective, loving way. If everyone who can supports their food bank and creates community driven initiatives to eradicate food insecurity, the government can’t ignore it. If the artists create art, and the people who can protest go to protests, and the workers all strike, then it sends a message loud and clear that they can try all they want, but we aren’t having it. We care about each other and we want to see a brighter future. And that big message starts with small actions. It starts with having a conversation, donating a can of beans, drawing a picture, and offering to help out a neighbour. Even if you’re only making a difference to one person, and even if that person is you, you are still making a difference. Never think you cannot make a difference; it’s at least worth a try. However that looks for you, even if it looks like rest right now. You matter. And it all intersects. 

Sending so much love and support to you all today xxx

Posted in Mental Health, Personal Growth

Fear of Going Crazy

Two years ago a group of young changemakers, including myself, came together for a discussion. We decided that we would all come dressed as our worst fears. There was one person dressed as a bat, another as a spider; one came as the idea of losing love. I came dressed as the fear of losing my mind. As someone with chronic mental illness, it’s not a fear that feels far away – it’s not a distant possibility that one day I’ll get dementia. It feels very real, very possible, and very close. And I wanted to talk about that here today, because it’s a part of my mental health experience that I haven’t seen reflected in many places.

Me dressed as the fear of losing my mind

I think many people with experience of mental health issues, or big emotions, can relate to the feeling that it’s never going to get better. In times of depression, grief, and heartache our ability to truly envision a future and see the fullness of life becomes warped. It’s a terrible phenomenon that unfortunately has taken many lives. I’ve experienced it myself many times and it is terrifying. But the feeling of going crazy, the fear of it, is something different for me. In intense moments it takes the same inability to see things getting changing and redirects them towards a feeling of a loss of self and loss of reality.

As a mentally ill person, despite owning the idea of being ‘mad’ with great pride, I feel I am constantly running from the idea of being seen as crazy. Which is almost certainly related to the stigma around certain symptoms – namely the less pretty ones, mania, psychosis, irritability, flight of ideas etc; the stigma around the idea of being ‘crazy’. My mental health difficulties are a huge part of my identity – by my own choosing – and yet I still feel a need to mask how they really are lest I lose control over the narrative of my own mental illness. So that’s a part of this fear, it’s not really a fear of losing my mind, but a fear of being seen as crazy and losing autonomy and connection because of it. A deep fear of being misunderstood and unseen.

Yet the real, gnawing fear for me is internal. It is a fear that one day I will become irreversibly changed; I will lose all knowledge of our shared reality and slip entirely into a different one; I will enter an episode and never come out; I will lose myself. It’s ridiculous really, because we are constantly irreversibly changed, and our idea of self is constantly changing. Most likely the fear is rooted in internalised ableism compounded by my experiences of madness.

As Carrie Fisher once said ‘once you’ve lost your mind you don’t know it’s missing’ (that wording may not be right, but that’s the gist). So really the end result that I’m so scared of would actually just be a different way of being. Nothing inherently better or worse about it for me. So what am I really afraid of? Other people’s judgments. A lack of autonomy and care. And perhaps ‘going crazy’ and then reemerging, as would most likely happen in all the scenarios I imagine. Because I have actually lost myself before – when I was drinking I lost sight of who I was. That process of reemerging is deeply, deeply painful so maybe that’s what I’m afraid of. And finally, when I am not in the intense whirlwind of feeling like I’m going crazy, I think what I fear the most is being in that whirlwind again.

Let me attempt to illustrate why the whirlwind is so terrifying. You see, in that place I am two versions of myself at the same time – trapped in a paradox being ripped apart with searing force. One version of myself is the whirlwind. It is the tornado, screaming and tearing through life. The other version of myself stands in the eye of the storm, trying to avoid its path, screaming pointlessly into the spiral to remember who we really are while losing touch with who I am at the same time. Mostly all I can hear is the version that becomes the tornado, but there comes these background thoughts, senses and moments where the version of myself that sees life more clearly breaks through. 

And really it is the background knowledge that something is not right, that there will be consequences, that I am hurting – it is that reminder of who I am that makes me so afraid and so hurt. I know somehow that something is wrong, but I can’t stop it. This paradox creates the fear of going crazy, because I’m trying to figure out what’s real, trying to be less angry, trying to do the right thing and still getting it wrong. The moments when the whirlwind drowns out all sense of self are actually more peaceful, in a strange way.

It’s really a pointless fear. I can do all I can to protect myself and those around me and nothing more. The idea of being judged is useless to me; the internal ableism is something for me to face. But still this fear raises its head every now and then. This year at drama school I became convinced I was ‘disappeared’ – not that I had disappeared, that I was disappeared. I was so far away from myself and yet able to drift through my life and I feared that it would be that way forever. It wasn’t. Most things don’t last forever and that is wonderful. Essentially, if you’re a mentally ill person who shares this fear – hi, you’re not alone! And if you’re not and this sounds to you like I’ve already gone crazy, who knows – our realities are only relative anyway. I choose to set free this fear today and face my future with love and action instead. Sending love and support to you all today xxx

Posted in Advocacy, Mental Health

‘Bedlam’s’ True Horror History

Today’s post is the first that looks into the history of psychiatry and ‘treatments’ for the insane, mad, mentally ill and neurodivergent, through a brief overview of the history of Bethlem. I think it’s important to share and learn about this history because it helps us to better understand the foundations and influences on psychiatry nowadays, and therefore understand the problems and potential solutions within the mental health system, including abolitionist approaches. I hope you find this little guide to be informing, let me know if you have any questions in the comments! Just a quick trigger warning for psychiatric violence and restraints.

Bethlem Royal Hospital was one of the first lunatic asylums. It’s horrifying history has inspired lots of books, movies and TV shows, most notably Bedlam.

So the real life horror in its history should be evident, otherwise why would it inspire such horror stories? Yet often we don’t stop to wonder about such histories that informed modern day psychiatry. It’s important to learn about this stuff because the legacies can still be seen nowadays in abusive, neglectful, and ineffective systems.

Bethlem was originally founded in 1247, and was linked to the Church of Bethlehem. It’s foundations are muddied and muddled – it was first used to house alms and poor people with religious ties and with the aim to make money. This monetary trend is also something we still see nowadays in many areas of life, including in the mental health system and coupled pharmaceutical industry.

It’s not known exactly when Bethlem was first used for the insane but is frequently assumed that this was from 1377. Management was through ‘keeperships’, with essentially sole control. Jumping ahead a bit, during Sleford’s keepership at the hospital (1579-1598) the buildings fell into disrepair – ‘so loathsomly filthely kept not fit for any man to come into the house’

However, living conditions didn’t exactly improve. Into the 19th century many inmates were left to sleep on straw beds and only permitted to go the toilet in their cells. Simultaneously financial exploitation by head physicians was common from the 17th century onwards – they were getting rich while the people inside suffered. In fact, in the 17th century several patients were found to be suffering from starvation, and staff practices were found to be a significant contributing factor to this. Staff practices are often a main complaint by inpatients today as well – but they are far too frequently brushed aside; once you’ve been labelled as unstable it’s incredibly difficult to reclaim your power and have your concerns legitimised.

While it appears restraints and solitary confinement were used for the insane at Bethlem from the start (and still today!), not a lot is known about so-called ‘treatment’ in the medieval period. However from 1460 the transition to a specialist institution for the insane was mostly complete and more is known from then on. In the 1680s cold baths were introduced as a form of treatment, as were incredibly hot baths later. Patients were bled, blistered, then dosed with emetics (make you vomit) and laxatives indiscriminately during the 18th century.

Perhaps one of the most disturbing parts of Bethlem’s history is that from the 17th century onwards visitors could pay to come and gawk at patients like animals in a zoo. Can you imagine the shame and anxiety of having your distress put on show as amusement for others? How could anyone possibly heal in that environment? We can infer from this a part of the pattern of control and benefit from locking mad people away rather than a genuine care for them as individuals and a desire for them to heal.

There was even an ‘Incurables Division’ added 1725-1738; patients in here could never hope to leave. One approach was rotational therapy: a patient was put in a chair suspended from a ceiling and spun at sometimes more than 100 rotations a minute

Experimental (read: unsafe) treatments were also used on patients at Bethlem. Furthermore modern investigations have uncovered mass graves on the property, dug exclusively for those who died under care at Bethlem.

This barely scratches the surface of Bethlem’s horrifying history of abuse and exploitation. The hospital is still in use today and many patients are still voicing their pain and trauma from their time there – restraints are still used, as are forced medication, and mad voices are not respected. There’s even a museum of patient’s artwork there, and while some exalt this as them respecting the patient’s expression, I have to wonder to what degree is it a modern day version of gawking st misunderstood minds?

We may have come a long way, but there’s still a lot further needed to travel.

Sources:

https://www.huffpost.com/entry/bedlam-the-horrors-of-lon_b_9499118/amp

https://en.m.wikipedia.org/wiki/Bethlem_Royal_Hospital

Porter 2006, Whittaker 1947 

Porter 1997 

Andrews et al, 1997 

‘A view of Bethalem’ 4th December 1598, quoted in Allderidge 1979

Posted in Advocacy, Mental Health

Over Pathologisation of Mental Health

We hear a lot nowadays about removing the stigma from mental illness, and that is incredibly important. After all, we all have mental health. But I also I think it’s essential while advocating in mental health spaces that we not only call for destigmatisation, but we also question the systems; call out the injustices of the systems meant to care for us. We must question whether medicalisation of mental health really helps us. Would it be necessary if our society wasn’t structured the way it is in the west? Does it further the link between mental illness and criminalisation? Because destigmatising mental distress isn’t only recognising that it exists, it’s asking why it exists, is the language we use to describe mental illness helpful, what does healing really mean, and how are we failing to learn the lessons from our madness? So here are some of my musings on the over pathologisation of mental health:

It individualises our pain without individualising our care – that is to say it tells us we are broken, it is our individual chemistry that is flawed, and we are to blame, yet also not putting us at the forefront of understanding our pain and choosing how we heal. It tells us we are too sick to know what’s really good for us, or that we don’t know ourselves well enough. It doesn’t allow us to learn who we are and what’s really at the root of our pain; doesn’t encourage us to put it into a sociopolitical context, and the context of what has informed our life. Doesn’t allow us to heal with others.

There is no community. No value given to peer support, to healing with others who are experiencing the same things or similar things or completely different things, but feel safe to heal with. Doesn’t encourage the connections that are vital to long term healing and alternative methods of care. If you want proof that peer support methods of healing work, look at AA – it revolutionised care for alcoholics. What was a death sentence became an opportunity for hope and healing.

Our pain is shunned and labelled, pathologised. Instead of learning to embrace the madness as part of who we are, we learn shame which in turn births more pain. Instead of learning to see mental distress as a natural human reaction, however difficult, we learn to be afraid of it. Language that could be used to free us is instead weaponised against us to strip us of our wholeness and our identity through clinical rotes.

But it doesn’t have to be that way. I don’t have all the answers. I listen to psychiatric abolitionists and I think, yeah, they have the answer. I listen to amazing healers in other cultures outside of the west and am filled with inspiration and hope. Then I look back at the world as it is and wonder if we don’t need to adapt our goals to be a little more realistic within the current frame of society here in the UK. I don’t have the answer nor a clear label for my ideology surrounding this all. But I do have hope. And I do know things are already changing. 

We don’t have to wait to build communities. We don’t have to wait to create new ways of healing. We don’t have to wait to find hope. 

You can also find a version of this post on my Instagram @our.happy.notes